Wednesday, June 24, 2009

frustrated

my ct didn't clear anything up.  they have now postponed my surgery.  apparently there is something weird going on with my bone marrow.  they have now found the "abnormality" in both of my shoulders as well as my hips.  it appears that there is something in my marrow that is not typical.  the doctors are leaning away from it being cancer mets for a couple of reasons.  first off, my tumor shrunk so much during chemo that it would stand to reason that any other cancer would have also shrunk- not gotten worse.  second, the abnormalities are very symmetrical (in all of my joints) which isn't typically how cancer shows itself.  third, my pain doesn't seem to be consistent with bone cancer.  my shoulder only hurts when i move it in certain ways.  and the other shoulder doesn't hurt at all.  and my hips *were* bothering me, but haven't been lately.   they have absolutely no idea what it is if it *isn't* cancer.  but everyone seems to be "leaning away" from cancer.  and they're "hopeful" that it isn't...  

i'm angry, frustrated, scared, and upset by the whole thing.  this has completely thrown a wrench into what had been a well planned surgery.  my kids were covered, people were taking off of work...  it has affected more people's schedules than i care to think about.  i'm soooo frustrated and angry.  last night i pretty much just shut down.  i didn't call or email any of the people that were waiting to hear from me, and i went across the street to heather's with amy and julie.  we sat around and drank wine and coffee until 11pm and then i was tired enough to fall into bed without thinking about it anymore.  

the next steps aren't scheduled yet, but they most likely involve a PET scan and a biopsy of my bone and/or bone marrow- i'm not clear on that, yet.  i'll be sitting by my phone today waiting for my next directions.  ugh.

8 comments:

CJ said...

Don't worry about everyone else and their schedules. We all just want to support you in any way that we can and we all understand that it's out of our control. So relax and take advantage of a few extra days where you aren't recuperating from surgery. Extra portions of ice cream seem to be in order, if you ask me...
love you, mom

Anonymous said...

Hi Mer,

I'm sorry for this set back. Thinking of you often!

LPC&S

Anonymous said...

Meredith,

So sorry for the delay, but try to enjoy these bonus days with your babies before the surgery, if you can.

Glad they're leaning away from more cancer ... praying that the answers come quickly and you can move forward soon!

Love, Peggy

Anonymous said...

WTF? Mer that setback sucks, but as the others said those that rearranged their schedule once will be happy to do it again because they love you and your family and want to support you in any way they can. Enjoy a few more days without the restrictions of a post surgery body and I will keep praying for an answer for you.
Sending you warm fuzzies

stollmyheart said...

No! Oh, I'm so upset for you right now. I can't even imagine how mentally taxing this must be...and to have all the best laid plans up in the air go haywhire. Plain and simple...it totally sucks. We'll be thinking happy healhty thoughts for you. Thanks for the updates...I'm here if you need anything! (((hugs)))

meredith said...

i have a PET scan scheduled for 2pm...

michelle said...

What in the world????? Well, you're at your scan right now, so hopefully my positive thoughts are finding their way westward to you! Can't wait to hear good news and let me know how I can help!

shell

lak said...

Mer,
I am so sorry for the delay and frustration. It totally sucks, all of it! I am here for you if you need me.
Lori